Kate got her square on the virtual EB quilt. Each Square represents an EB child, adult, or an angel in heaven. Feel free to check it out by clicking here if you click on the name of a person it will sometimes just give you an e-mail address but some of them link to sites created for that individual with their whole story, if you read some of them have a box of tissues at the ready.
Epidermolysis Bullosa Info Links (Kate's skin condition)
Our very own little sporty spice, Kate is a tom boy for now and loves to play baseball, tennis, minature golf and is a fish in the pool. She loves to ride her bike and scooter. She loves puzzles, crafts and coloring. She does not like candy! She suffers from a rare and genetic skin condition called Epidermolysis Bullosa, for more info go to http://www.debra.org/ or http://www.ebinfoworld.com/ we are lucky hers is mild and she amazes us with how little it bothers her.
Sara
Sweet Sara
Still sweet and almost 3, Sara is very girly, she would wear a dress everyday. She loves her dolls and books, she loves Kate and loves to play with her stuff! Sara also loves candy.
Red 5
Fab hubby
This is Red 5 aka my wonderful hubby. He fancies himself as a bit of a handy andy (he's actually pretty good), as I create this blog he is in our bedroom hanging the TV on the wall using all kinds of wall anchors and a whole lot of spackle.
I am Claire, a professional genealogist and researcher with over 15 years of experience. I was born and raised in England before relocating to Utah, United States. I hope to share my passion for researching British ancestors with you. This is the place where you can find tips and ideas on how to research for yourself. Or, if you would prefer, I would be happy to tackle a research project for you.You can contact me for availability and pricing.
1 comment:
ice skating?? how fun is that! she is such sweet girl. hope she is back to feeling 100% soon!
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