A little of what the Thompson's are up to.

Thursday, September 3, 2009

meet kate

This is Kate, she is 5 yrs old

This is Kate's foot

and boy is it bothering her right now, she is having a hard time walking today...

This is all due to her Epidermolysis Bullosa or EB for short. EB has been called "THE worst DISEASE YOU NEVER HEARD OF" its rare and we are very, very lucky that Kate's is mild but occasionally she still suffers. If you shop and Ralphs you can help by linking your Ralphs card to the community contribution program, (if you have done this before you have to re-sign up every September). Ralphs will then donate a % of what you spend to research for EB. You may be able to just click here and enter your ralphs card # to sign up, the organization name is EBMRF and the NPO # is 81963, if that link didn't work for you here is step by step:- Just go to http://www.ralphs.com/, and click on Ralphs Reward Card in the top right corner. Then click on choose your prefered store enter your zip and choose your Ralphs, when you click on 'make it my prefered store'you should get a page where one of the options is community contribution, click on that, then on enroll and you should be able to enter your Ralphs card #, the organization is EBMRF and the NPO # is 81963. If you want to sign up and have problems you can always call ralphs at (888) 437-3496.

This is life with EB, the good, the bad and the ugly....

1 comment:

Crazy Lady said...

Oh Claire, that Kate is one strong soul. What an amazing girl, so brave and beautiful.

I wish we never knew about EB and that it never existed. Big kiss from me on that cute little foot!